Perceived Needs and Challenges of Non-State Caregivers in Palliative Care in Imphal West District Manipur: A Qualitative Study

Authors

  • Annastasia A. Sangma Post Graduate Trainee Community Medicine Department RIMS, Imphal 795004 Manipur
  • Jyothi S. PGT, Department of Community Medicine, RIMS, Manipur University
  • Pooja Akoijam Senior Resident, Department of Community Medicine, RIMS, Manipur University
  • Brogen Singh Akoijam Professor, Department of Community Medicine, RIMS, Manipur University
  • H. Sanayaima Devi Professor and Head of Department, Department of Community Medicine, RIMS, Manipur University

DOI:

https://doi.org/10.61986/ijpem.v1.i2.2024.15

Keywords:

challenges; needs; non- state

Abstract

Introduction: There is a need for assessing caregivers’ perceived needs and challenges in the private sector as their involvement in palliative care is the need of the hour, so that we can fill the gap between quality care and improved health. Aim: To explore the perceived needs and challenges of caregivers in palliative care in private sector, Imphal West district Manipur. Methods: A Qualitative study was conducted in Imphal West district in Manipur, India from December 2022 to January 2023 among Palliative care-givers and volunteers from private sector of Imphal-West district. Purposive sampling was done till theoretical saturation was reached. Data was collected using In-depth interview (IDI)/ Focus Group Discussions (FGDs) with voice recordings and transcribed verbatim. Transcribed data was translated into English language and coded. Thematic analysis was done using inductive approach. Ethical approval was sought from the Research Ethics Board, RIMS, Imphal.

Results: Themes identified were- physical challenges, psychological challenges, financial burden, personhood, working conditions, quality of care Conclusion: Majority of the caregivers discussed need for emotional and physical support. Financial burden, misuse during work hours, work- personal life imbalance, need for formal training were identified as challenges of the caregivers. Hence, necessary steps need to be taken to improve the overall skill and quality of life of palliative caregivers.

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Published

2024-03-29

How to Cite

Sangma, A. A., S., J., Akoijam, P., Akoijam, B. S., & Sanayaima Devi, H. (2024). Perceived Needs and Challenges of Non-State Caregivers in Palliative Care in Imphal West District Manipur: A Qualitative Study. International Journal of Preventative & Evidence Based Medicine, 1(2), 10–15. https://doi.org/10.61986/ijpem.v1.i2.2024.15

Issue

Volume 1, Issue 2, January-March 2024

Section

Original Research Articles

License

Copyright (c) 2024 Annastasia A. Sangma, Jyothi S., Pooja Akoijam, Brogen Singh Akoijam, H. Sanayaima Devi (Author)

Creative Commons License

This work is licensed under a Creative Commons Attribution-NonCommercial-NoDerivatives 4.0 International License.

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