Perceived Needs and Challenges of Non-State Caregivers in Palliative Care in Imphal West District Manipur: A Qualitative Study


  • Annastasia A. Sangma Post Graduate Trainee Community Medicine Department RIMS, Imphal 795004 Manipur
  • Jyothi S. PGT, Department of Community Medicine, RIMS, Manipur University
  • Pooja Akoijam Senior Resident, Department of Community Medicine, RIMS, Manipur University
  • Brogen Singh Akoijam Professor, Department of Community Medicine, RIMS, Manipur University
  • H. Sanayaima Devi Professor and Head of Department, Department of Community Medicine, RIMS, Manipur University



challenges; needs; non- state


Introduction: There is a need for assessing caregivers’ perceived needs and challenges in the private sector as their involvement in palliative care is the need of the hour, so that we can fill the gap between quality care and improved health. Aim: To explore the perceived needs and challenges of caregivers in palliative care in private sector, Imphal West district Manipur. Methods: A Qualitative study was conducted in Imphal West district in Manipur, India from December 2022 to January 2023 among Palliative care-givers and volunteers from private sector of Imphal-West district. Purposive sampling was done till theoretical saturation was reached. Data was collected using In-depth interview (IDI)/ Focus Group Discussions (FGDs) with voice recordings and transcribed verbatim. Transcribed data was translated into English language and coded. Thematic analysis was done using inductive approach. Ethical approval was sought from the Research Ethics Board, RIMS, Imphal.

Results: Themes identified were- physical challenges, psychological challenges, financial burden, personhood, working conditions, quality of care Conclusion: Majority of the caregivers discussed need for emotional and physical support. Financial burden, misuse during work hours, work- personal life imbalance, need for formal training were identified as challenges of the caregivers. Hence, necessary steps need to be taken to improve the overall skill and quality of life of palliative caregivers.


Download data is not yet available.




How to Cite

Sangma, A. A., S., J., Akoijam, P., Akoijam, B. S., & Sanayaima Devi, H. (2024). Perceived Needs and Challenges of Non-State Caregivers in Palliative Care in Imphal West District Manipur: A Qualitative Study. International Journal of Preventative & Evidence Based Medicine, 1(2), 10–15.



Original Research Articles


WHO. Palliative care [Internet]. Geneva; 2020 [cited on 21st December 2022]. Available from:

Wentlandt K, Krzyzanowska MK, Swami N, et al. Referral practices of oncologists to specialized palliative care. J Clin Oncol. 2012;30:4380-6.

Fadul N, Elsayem A, Palmer JL, et al. upportive versus palliative care: hat’s in a name? a survey of medical oncologists and midlevel providers at a comprehensive cancer centre. Cancer. 2009;115:2013-21.

Maciasz RM, Arnold RM, Chu E, et al. Does it matter what you call it? A randomized trial of language used to describe palliative care services. Support Care Cancer. 2013;21:3411-9.

Hinton J. Can home care maintain an acceptable quality of life for patients with terminal cancer and their relatives? Palliat Med. 1994;8(3):183–196.

Townsend J, Frank AO, Fermont D, et al. er inal cancer care and patients’ preference for place of death: a prospective study. BMJ. 1990;301(6749):415–417.

Cull AM. Studying stress in caregivers: art or science? Br J Cancer. 1991;64(6):981–984.

Loke AY, Liu CF, Szeto Y. The difficulties faced by informal caregivers of patients with terminal cancer in Hong Kong and the available social support. Cancer Nurs. 2003;26(4):276–283.

Hudson P. Positive aspects and challenges associated with caring for a dying relative at home. Int J Palliat Nurs. 2004;10(2):58–65.

Payne S, Smith P, Dean S. Identifying the concerns of informal carers in palliative care. Palliat Med. 1999;13(1):37–44.

Ferrario SR, Cardillo V, Vicario F, Balzarini E, Zotti AM. Advanced cancer at home: caregiving and bereavement. Palliat Med. 2004;18(2):129–136.

Grunfeld E, Coyle D, Whelan T, et al. Family caregiver burden: results of a longitudinal study of breast cancer patients and their principal caregivers. CMAJ. 2004;170(12):1795–1801.

Peter, Hours, Iren et al. Information needs of families of cancer patients: a literature review and recommendations. J Cancer Educ. 1991;6(4):1543–1554.

Higginson I, Wade A, McCarthy M. Palliative care: views of patients and their families. BMJ. 1990;301(6746):277–281.

Sharma P, John AO. Palliative care in India: Care Beyond Cure. Hindustan Times. 2022 April 04 [cited 2022 Dec 22]; Available from:

Ningombam S. Palliative care service fund shortage will be addressed soon'. Imphal Free Press by IFP bureau. 2022 Aug 7 [cited 2022 Dec 22]; Available from:

Adejoh SO, Boele F, Akeju D, Dandadzi A, Nabirye E, Namisango et al. The role, impact, and support of informal caregivers in the delivery of palliative care for patients with advanced cancer: A multi-country qualitative study. Palliative medicine. 2021 Mar;35(3):552-62.

Musonda KC, Nyashanu M, Mutale W, Sitali D, Mweemba O et al. Exploring The Challenges Faced by Informal Home Based Palliative (HBP) Caregivers in Ndola District, Zambia. Journal of Social Work in End-of-Life & Palliative Care. 2021 Oct 2;17(4):349-63.

Praveena Daya A, Sarkar S, Kar SS. Needs of the caregivers of people requiring palliative care in an urban area of Pondicherry, South India. Int J Community Med Public Health. 2018 Jun;5(6):1.